Lichen planus
Bridget Nelson was diagnosed with a painful, erosive form of lichen planus that affected her mouth and vulva.
Today, she's relatively pain-free and keeps her condition under control with steroid treatments.
"My problems started with an initial flare-up of vulval pain on Christmas Eve 2003, when I was 42, although looking back I'd had mouth soreness and ulceration for about a year before this.
"I thought I had an infection and went to see my GP, who treated me for Thrush , but the problem remained. I then had an MRI scan , swabs, a gynaecological scan and X-rays of my lumbar area (spine), but none of the tests showed anything abnormal and the doctors didn't know what was wrong.
"I began to give up hope and got very depressed. Every time I went to see my GP, my flare-up had flared down and there was nothing much to see. In the end I took photographs of my vulva when it had flared up, and showed these to my GP. I got a referral to a dermatologist, and was finally diagnosed with vulval and oral erosive lichen planus.
"I started treatment at the end of July 2005 with a high-potency topical steroid (ointment) for my vulva and a steroid spray for my mouth. It took about four months before my lichen planus was under control with the treatment.
"In the meantime, I was in so much pain I wasn't able to go on long car journeys and had to give up my office-based job, which involved a lot of sitting at a computer. I felt too embarrassed to tell anyone about my condition and a complete failure for not being strong enough to hold down a job.
"I couldn't wear trousers or tights, and sometimes even knickers were too painful against my skin. I mainly wear skirts and stockings now.I also can't take baths, only showers, and without any perfumed shower gels.
"After a while I got to know what triggered my flare-ups: stress and sitting for any length of time. I learnt to avoid these as much as possible, although I sometimes flare up for no reason at all.
"My partner and I had a difficult time together, but he stayed with me and we have adapted with the condition. We're now happier than ever.
"Now my condition is managed really well with a steroid cream called Dermovate, which is for the vulva, and an oral steroid for the mouth lesions. I am mainly free from flare-ups and pain.
"In November 2007, I set up the charity UK Lichen Planus to provide clear, up-to-date information for other people with the conditionand give them some much-needed support."
Lichen planus is a non-infectious, itchy rash that can affect many areas of the body.
The symptoms of lichen planus vary, depending on which area of the body is affected. Affected areas can include the skin, mouth, penis and vulva.
The cause of lichen planus is unknown. It's thought to be related to the immune system, or an abnormal response of the immune system to certain medicines.
If you have lichen planus of the skin, your GP will examine the affected area and may be able to make a diagnosis based on the characteristic rash.
There's no cure for lichen planus, so treatments aim to ease the symptoms and clear the rash. Mild lichen planus doesn't require treatment.
Complications of lichen planus may include discoloured skin and, in some cases, erosive lichen planus may develop into certain types of cancer.
Dale Hodgson was diagnosed with oral lichen planus when she was 44, and has learnt to adapt her lifestyle in order to cope.
Bridget Nelson was diagnosed with a painful, erosive form of lichen planus that affected her mouth and vulva.