Leonie Martin has relapsing remitting multiple sclerosis (MS).She resigned from her job in management seven years ago after a series of relapses and cognitive problems left her unable to carry out her role.She explains how she learnt to manage her symptoms.
"When I was diagnosed with MS I tried to ignore it. I had a busy, hectic lifestyle and a well-paid job in office management at a local school.
"I thought Id be able to manage my MS and that my lifestyle wouldnt have any effect on my symptoms, but problems soon started to occur. I would be in the middle of an important presentation when my mind would suddenly go blank.I found concentrating extremely difficult; if I was interrupted while in the middle of something, I would need to start from the beginning again.
"I lost the ability to delegate work to my staff, mainly because I couldnt keep track of what Id asked, and I began taking unfinished work home so I could concentrate on it in the evening. I could no longer multi-task and gradually lost all sense of perspective I would regularly break down in floods of tears at my desk, which was unsettling for my colleagues.
"I knew the problems were connected to my MS, as Id been doing the job very capably for years and I think it was because of this that my employer and colleagues struggled to understand.I became anxious, paranoid and depressed, and two years after my diagnosis, decided to leave work. At the time, I was having three relapses a year and my neurologist prescribed me weekly beta interferon injections.
"Following a full neuropsychological assessment by a specialist, I became involved in a cognitive behavioural therapy (CBT) pilot study. The course helped me understand more about managing my symptoms and showed me how to focus more on what I could do rather than what I couldnt. I learnt to pace myself more and be kinder to myself refraining from getting angry when I forgot to do something.
"I found that by splitting my day into three sections morning, afternoon and evening I could manage my fatigue, and therefore my cognitive problems and mood swings.Now I know that I cant do something in all three sections, so if Im out to dinner with friends on an evening, Ill sleep in the afternoon.I also try to exercise more, but have to ensure I build in a rest period afterwards.
"Ive learnt more about the types of fatigue and now understand that applying a lot of concentration to something for a period of time can be as exhausting as standing all afternoon.I need to get the right balance and think about my daily choices.
"Im now self employed as a freelance writer its flexible and has reduced my stress levels and relapses. I havent had a major flare-up in three years, but understandably its had a major impact on the family in terms of finances.
"Cognitive behavioural therapy worked for mebut its not a magic wand.You need to be open-minded and want to learn how to get the best out of your own circumstances. You also have to be prepared to commit time and energy, both during the sessions and at home in between.
"I wish I had known about CBT earlierI learnt to deal with my symptoms the hard way, but Im happy that Ive now found the right balance."
Multiple sclerosis (MS) is a condition which can affect the brain and/or spinal cord, causing a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance.
Read about the main symptoms of multiple sclerosis (MS), including fatigue, unusual sensations, difficulties with movement and vision problems.
Exactly why someone develops multiple sclerosis (MS) isn't known. It's not caused by anything you've done and it's not clear whether it can be prevented.
It can be hard to tell whether your symptoms might be caused by multiple sclerosis (MS) at first, as some of the symptoms can be quite vague or similar to other conditions.
There's currently no cure for multiple sclerosis (MS), but it's possible to treat the symptoms with medications and other treatments.
You may have to adapt your daily life if you're diagnosed with multiple sclerosis (MS), but with the right care and support many people can lead long, active and healthy lives.
Jo was diagnosed with multiple sclerosis after the birth of her son. She explains how it affects her body, her ability to move around and her family life.
Narinder Kaur-Logue has an aggressive form of relapsing remitting multiple sclerosis. She experiences debilitating fatigue on a daily basis and has regular relapses.
Leonie Martin, age 45, has relapsing-remitting multiple sclerosis.She explains how she learnt to manage her symptoms.