Treatments for PoTS

Self-care measures can sometimes help reduce the symptoms of PoTS. If these don't work, you may need to take medication.

Treating an episode

If you suddenly feel faint or dizzy, you can try countering the fall in blood flow by:

  • lying downand, if you can, raising your legs
  • crossing your legs in front of each otherwhile standing, rocking up and down on your toes, clenching your buttocks and tummy muscles and/or clenching your fists if you're unable to lie down

Reducing your symptoms

You may be able toreduceyour symptomsin the long-term by following this advice:

  • drink plenty of fluids until yoururine is pale yellow
  • keep active, but pace yourself and choose your exercise wisely swimming, rowing, lower limb resistance training, walking, jogging and pilates can help you keep fit and build muscle (strong calf muscles should help pump blood back to your heart)
  • elevate thehead end of your bed,so you're not sleepingfully horizontal
  • try wearing support tights or other forms of compression clothing, to improve blood flow in your legs
  • avoid long periods of standing
  • come up from lying slowlysit for a while before standing
  • avoid drinking lots of caffeine or alcohol
  • include more salt in your dietthis isn'tadvisable if you have high blood pressure or kidney or heart disease though, so ask your specialist first

The PoTS UK website has more general advice about reducing your symptoms and the charitySTARS has information about managing your symptoms .

Medication

There's currently no medication licensed for the treatment of PoTS, but your specialist might suggest trying a medication"off label", such as:

  • a beta-blocker or ivabradine which decreases the heart rate
  • midodrine which narrows the blood vessels
  • fludrocortisone which decreases the amount of sodium lost in your urine
  • selective serotonin reuptake inhibitors (SSRIs) a type of antidepressant that can affect how your nervous system works

If a medicine is used "off label",it means it hasn't undergone clinical trials for this use, but many experts believe it's likely to be effective and your doctor will discuss the possible benefits and risks with you.

Content supplied by the NHS Website

Medically Reviewed by a doctor on 21 Dec 2018