Brain Tumour Malignant

Patient story: "I'm definitely one of the lucky ones."

Source: NHS

April Watkins was diagnosed with a brain tumour soon after starting university. She tells her story.

"In the September of 2009, I went off to university in Plymouth. It should have been the start of an exciting new chapter of my life, but Mum had just been diagnosed with lung cancer.

"In January the following year, I started having really serious headaches and saw various different GPs, who all diagnosed migraine and offered me painkillers. They all thought that it was down to the stress of my first year of university and didnt think it was anything serious.

"As my headaches became worse, I saw a total of 11 different medical professionals including GPs, A&E doctors and opticians, who diagnosed me with a variety things from migraines to sinus problems. I was even given some glasses.

"Then the headaches became even more unbearable, so I rang Derriford Hospital in Plymouth and begged for help. After being seen by a doctor there, I was given an emergency MRI scan that revealed I had a brain tumour.

"I immediately had an operation to insert a shunt into my brain to drain the fluid which had been causing so much pressure, hence the excruciating headaches, and then underwent a seven-and-a-half hour craniotomy to remove the tumour.

"I was told it was cancerous and that it was a grade IV medulloblastoma. Apparently, if I had waited the two weeks for the MRI at Kings, I would have died.

"To give me every chance of beating the cancer, I immediately underwent six bouts of chemotherapy one cycle every two weeks if I was well enough, followed by radiotherapy twice a day for five weeks and then a year of maintenance chemo. Having chemo made me feel very anxious and it was tough losing my hair.

"I took the whole of my second university term out, but then returned and was fortunate enough to have a host of people round me who supported me, so that I always had a friend to accompany me on hospital visits.

"In April while I was going through my chemo and radiotherapy Mum passed away. It was such an awful time, particularly as I hadnt got to spend much time with my Mum because of my own problems, and after she passed away my health deteriorated further. There was even a chance the doctors were not going to allow me to go to the funeral, but thankfully I was able to attend

"My sister gave birth to her second child in July. Little Jake brought us all mixed emotions great joy, but also such sadness that he would never know his Nan.

"A month later, a scan revealed no trace of the tumour and subsequent scans have all been clear.

"I have now completed my degree and I am living and working in Brighton. Since my diagnosis, I have met a lot of people with brain tumours and seen many who have lost their hair and have the Frankenstein scar on their head. I have seen those who have suffered horrible side effects from their surgery or radiotherapy people who have gone blind, lost mobility so that they have to learn to walk again, and those whose personalities have altered almost beyond recognition.

"I am definitely one of the lucky ones, having suffered no lasting side effects, but it just goes to show how important it is to support research into brain tumours to find more effective treatments which hopefully dont have such an impact on the rest of a patients life."

This case history was provided by Brain Tumour Research.

Articles for Brain Tumour Malignant

Causes

Most malignant brain tumours are caused by a cancer that started somewhere else in the body and spread to the brain, through the bloodstream.

Diagnosis

If you develop the symptoms of a brain tumour, such as a persistent and severe headache, see your GP.

Introduction

A malignant brain tumour is a fast-growing cancer that spreads to other areas of the brain and spine.

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Emily Jones was diagnosed with a brain tumour after experiencing repeated vomiting and dizziness for over a year.

Patient story: "I'm definitely one of the lucky ones."

April Watkins was diagnosed with a brain tumour soon after starting university. She tells her story.

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After collapsing at work, Alan Thomas was diagnosed with a brain tumour.He tells his story.

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Recovery and follow-up after brain tumor

Malignant brain tumours often grow back after treatment, so regular follow-up appointments will be recommended to look for signs that this may have happened.

Symptoms

The symptoms of a malignant brain tumour depend on how big it is and where it is in the brain.

Treatment

If you have a malignant brain tumour, you'll usually need surgery to remove as much of it as possible.