Patient story: "Even the thought of going into my garden made me panic."

Claire Ledger was diagnosed with agoraphobia after having a panic attack inthe streetwhile shopping.

Claire, who was 26 at the time of this interview, was unable to explain the experience. She initially thought it may have had something to do with where she was, so she stopped going there and began to shop elsewhere. When she had a similar panic attack in another location, she stopped going there, too.

Within five months she'd stopped going to so many places she only felt truly safe at home. She left her job as a nurse and spent the next 2.5 years indoors. She read, watched TV, surfed the web and cared for her husband, who is in a wheelchair, and never went outside.

"When I had the first attack, I didn't know what was happening," says Claire, who lives in Bradford, West Yorkshire. "I was in a shop and felt faint all of a sudden, and had to crouch down to avoid collapsing. I was shaking and felt sick."

Claire went to her GP, who initially thought she was suffering from stress. Claire had just started a new job, recently got married, and was having IVF .

"Every time I went out after that I got this feeling again," she says. "Everywhere it happened, I avoided that place. Instead of thinking it was me, I associated the panic attack with the place where it happened. I was such an outgoing person, the idea that it was all in my head never occurred to me."

Claire was eventually diagnosed with agoraphobia. "I got to a point where my stomach dropped as soon as I woke up," she says. "It's like a feeling of grief and despair. You're shaking, tired, and you don't really feel there. It's like you're watching yourself.

"I tried to get through it, but I reached a stage when even the thought of going into my own garden made me panic. It was like coming up against an invisible wall.

"It was hard on my husband. He's a big sports fan and likes going out to watch live events."

The couple's elderly neighbours would help out with getting food and household supplies. "I felt ashamed that someone in their70s was doing my shopping," says Claire.

Claire became determined to seek treatment and went on a course of cognitive behavioural therapy (CBT) . She found the treatment helpful, but it didn't change her thought process.

What made the difference wastalking to other people with agoraphobia, who she contacted through online support groups. "You feel like a freak," she says. "Talking to other people in the same position was what helped me the most. We worked on breaking down our boundaries together."

She became friends with a woman in another town and they would make the same trips together in their respective neighbourhoods, slowly increasingthe length of their journeys.

"We would call each other before leaving the house and would remain on the phone to each other until we got back in," says Claire. "Even though she wasn't there in person, her voice was really reassuring."

For the next two years, this was how Claire expanded her boundaries from her doorstep. "My husband changed our mobile provider when he saw the monthly bills I was running up!"

Claire has learned to cope with her moods and has now regained enough confidence to go back to work. "It's important for people to know that you can recover," she says. "You may think it's like a death sentence, but the treatments do work. I never thought I'd return to work.

"I still have my down days, but I've learned to accept that you can't feel your best every day."

 
Content supplied by the NHS Website

Medically Reviewed by a doctor on 30 Nov 2016