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Support groups and charities Neuroblastoma
NeuroblastomaBeing told your child has cancer can be a distressing and daunting experience. You may find it useful to contact a support group or charity, such as: Cancer Research UK Children's Cancer and Leukaemia Group Children with Cancer UK CLIC Sargent Macmillan Cancer Support Neuroblastoma UK Solving Kids' Cancer These are good
What happens in MDS? Myelodysplastic syndrome (myelodysplasia)
Myelodysplastic syndrome (myelodysplasia)Normally, bone marrow produces: red blood cells to carry oxygen around your body white blood cells to help fight infection platelets to help your blood to clot In MDS,your bone marrow doesn't make enough healthyred blood cells, white blood cells and/or platelets. Instead, it makes abnormalcells thatare not fully developed. As the condition
What are the symptoms? Myelodysplastic syndrome (myelodysplasia)
Myelodysplastic syndrome (myelodysplasia)For most people, symptoms are mild at first and slowly get worse.You may initially experience: weakness, tiredness and occasional breathlessness because ofthe low number of red blood cells frequent infections because ofthe low number of white blood cells bruising and easy bleeding (such as nosebleeds ) because ofthe low number of
How is it diagnosed? Myelodysplastic syndrome (myelodysplasia)
Myelodysplastic syndrome (myelodysplasia)MDS is diagnosedby carrying out blood tests and bone marrow tests. Blood tests will show how many normal and abnormal blood cells you have. A bone marrow test is done under local anaesthetic , which is injectedinto the area behind your hip bone.Thedoctor then passes a needle through your skin and into your bone, drawing out a sample of your bone
Cancer risk Myelodysplastic syndrome (myelodysplasia)
Myelodysplastic syndrome (myelodysplasia)Some people with MDS go on to develop acute myeloid leukaemia (AML) , which is cancer of the white blood cells. This is known as "transformation". According to Cancer Research UK, the risk varies from five in every 100 cases (5%) to 65 out of every 100 cases (65%), depending on the type of MDS you have. It can take a few months or up to several
How is it diagnosed? Multiple system atrophy
Multiple system atrophyThere is no specific test to diagnose multiple system atrophy. A diagnosis can usually be made based on the symptoms, although it can potentially be confused with Parkinson's disease. The box on this page explains how multiple system atrophy is different to Parkinson's disease. If a doctor (usually a neurologist) suspects multiple system
Support for patients Multiple system atrophy
Multiple system atrophyIf you have been diagnosed with multiple system atrophy, your treatment and medical care will probably be the first thing on your mind. However, there are other aspects of your life to consider, and it's important to know exactly what kind of assistance is available and where you can get it. If you are finding it hard to cope with day-to-day
Causes Narcolepsy
NarcolepsyManycases of narcolepsy are thought to be caused bya lack of the brain chemical hypocretin (also known as orexin), which regulates sleep. This deficiency is thought to result fromthe immune system mistakenly attacking parts of the brain that producehypocretin. However, a lack of hypocretin isn't the cause in all cases. Immune system problem
Getting help and support Selective mutism
Selective mutismIt's only relativelyrecently that selective mutism has been properly understood and effective treatment approaches have been developed. The body of expertise among healthcare professionals, educational psychologists and teaching staff is growing, but those seeking help need to be prepared for the fact that professionals in their area may not have
Techniques and equipment used in occupational therapy Occupational therapy
Occupational therapyMany different techniques and equipment can be used as part of occupational therapy, depending on the difficulties you are having. Some of these techniques are explained below. Thinking about activities differently A key aim of occupational therapy is to help you develop or maintain a satisfying routine of meaningful everyday activities that can